"Reimagining Mental Health Care" - Dr. Vikram Patel Joins the Care Transitions Today Podcast for a Special Bonus Episode
Is care coordination the missing piece to combatting the mental health crisis? A top mental health expert joins the podcast dedicated to successful care coordination to review how intertwined these subjects are, or should, be.
ACMA Podcast Page: acmaweb.org/podcast
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The United States has devoted more resources, attention and industry professionals to positively impact mental health in America, including suicide and substance abuse mortality rates. Despite this increased attention, mental health metrics in the US have increased in the last 20 years, especially with youth and minorities. What’s broken and why is it broken? While the pandemic has had a noticeable impact, research shows that mental health in the US was declining before COVID-19 due to various factors, including dialogue about its implications.
Dr. Vikram Patel, MBBS, Ph.D. and Harvard professor, joins the Care Transitions Today podcast to discuss reimagining mental health care. Joined by host and longtime healthcare leader Deb McElroy, hear Dr. Patel explain the mental health care implications of the pandemic, review innovative approaches to enhance access to quality care and examine how these approaches can be scaled to reduce mental health disparities. To listen to this episode, visit acmaweb.org/podcast or search “Care Transitions Today” on any podcast platform.
Dr. Patel is the Pershing Square Professor of Global Health and Wellcome Trust Principal Research Fellow at the Harvard Medical School. Over the past two decades, he has focused on reducing the treatment gap for mental disorders in low resource countries. He is also a Fellow of the UK’s Academy of Medical Sciences and has served on WHO expert and Government of India committees. Dr. Patel is the co-founder of Sangath, a local NGO dedicated to mental health and wellbeing. He has led efforts to set up the Movement for Global Mental Health, a network that supports mental health care as a fundamental human right.
About Care Transitions Today
Care Transitions Today is a biweekly podcast created by the American Case Management Association (ACMA), currently in its second season. The podcast is hosted by Deb McElroy and is dedicated to discussing topics related to all things case management and transitions of care with experts from across the country. Deb brings her extensive experience in the public health sector to embrace frank conversations and share experiences, wisdom and expertise to help health care professionals respond and adapt to today’s health care environment.
About the American Case Management Association
The American Case Management Association (ACMA) is a professional membership organization for nurses, social workers, physician leaders and other health care professionals in case management and transitions of care practice. Founded in 1999, ACMA is comprised of more than 8,000 members nationwide, making it the largest non-profit professional membership association for case management and transition of care (TOC) professionals. ACMA provides resources, solutions and support to over 40,000 educational subscribers. For more information, visit http://www.acmaweb.org.
Write up written by Jon Vickers
American Case Management Association
LITTLE ROCK, ARK
July 28, 2021
A $10 million Lone Star Prize was awarded to Meadows Mental Health Policy Institute for its competition entry, the “Lone Star Depression Challenge.”
In collaboration with the Department of Global Health and Social Medicine in the Blavatnik Institute at Harvard Medical School, the Center for Depression Research and Clinical Care at UT Southwestern Medical Center, and The Path Forward for Mental Health and Substance Use, the Meadows Institute aims to increase the rate of recovery from depression in Texas from less than 10 percent today to more than 50 percent through early detection and treatment in primary care.
The Lone Star Prize, awarded by Lyda Hill Philanthropies and managed by Lever for Change, is a Texas-based competition that was launched in early 2020 to find and fund bold solutions focused on building healthier, stronger communities.
Vikram Patel, the HMS Pershing Square Professor of Global Health, will lead the HMS portion of the collaboration. He will use the EMPOWER initiative to deploy a suite of digital tools to train, supervise, and support community health workers in delivering brief, psychological treatments that have proven effective for treating depression in primary care and community settings around the world.
“We’re at the start of a journey to build the world’s community-based mental health force, which is essential for addressing the vast unmet need for high quality mental health care,” Patel said. “Our initiative uses both established and novel digital tools to leverage decades of clinical and implementation research, giving community health workers the power to implement evidence-based treatments for patients with depression.”
Throughout his career, Patel has led pioneering studies that quantified the health, social, and economic costs of mental illness in low-resource contexts globally. He has developed and tested models of care delivery that leverage available low-cost resources, such as community health workers, to deliver the high quality mental health care described in his book, Where There Is No Psychiatrist. This work is embodied in his long-standing collaboration with the Indian nongovernmental community health organization Sangath.
“The Lone Star Depression Challenge is a fantastic opportunity to build a project at scale in one of the largest states in the U.S.,” Patel said. “Ultimately, we hope our approach will greatly expand the footprint of the existing mental health care system into the community, in particular reaching those who have historically had limited access to mental health care, and show the potential of this innovation to help millions of other people around the nation and around the world.”
Paul Farmer, chair of the HMS Department of Global Health and Social Medicine, offered heartfelt congratulations for Patel and to the other collaborators in the Lone Star Depression Challenge, noting that the prize rightly acknowledges the importance of addressing mental health as a matter of highest importance.
“Every careful study of the afflictions that burden communities, regardless of how they’re bounded, shows that mental illness is at the top of list, while resources to address it remain the lowest of our priorities,” Farmer said. “From India to the United States, Vikram has sought to correct this mismatch, not only by calling it out but by developing effective, safe, inexpensive, and novel community- and family-based interventions to address this imbalance. The world has reason to join us in celebrating this prize.”
In Texas today, an average of eight to ten years passes before depression is diagnosed after symptoms emerge. Because of this, fewer than 1 in 15 of the 1.5 million Texans suffering from depression each year receive sufficient care to recover.
The Meadows Institute says that once fully realized, the Lone Star Depression Challenge will free Texans affected by depression by scaling clinical solutions in health systems, empowering marginalized communities to achieve equitable outcomes, and harnessing purchaser-driven market forces to accelerate adoption of these changes. The Lone Star Prize will enable the collaborators to combine and scale up three innovative programs.
These programs include:
EMPOWER, a suite of digital solutions enabling community-based frontline providers to learn, master, and deliver brief psychological treatments, therefore extending their reach to marginalized communities with limited access to quality care. EMPOWER builds on two decades of research demonstrating that frontline providers can be trained to deliver brief psychological treatments for depression.
Patel will direct the implementation of EMPOWER for the Lone Star Depression Challenge along with project co-lead John Naslund, instructor in global health and social medicine at HMS.
Naslund noted that there are many gaps in mental health coverage across the large, diverse population of Texas, accentuated by deep disparities in coverage between urban and rural communities, racial and ethnic groups, and social and economic strata.
“One of our main goals is to close those gaps, particularly around equity,” Naslund said. Because specialist mental health care is scarce in many communities with high rates of depression, it’s especially important to expand the reach of mental health services to primary care and to strengthen the community health system, he said.
Over the course of the five-year term of the Lone Star Depression Challenge, EMPOWER will train hundreds of community health workers and reach many thousands of Texans in need. Community health workers will learn to recognize depression and to use an evidence-based treatment called behavioral activation, which seeks to break the vicious cycle of social withdrawal and retreat that characterizes depression and replace it with a virtuous cycle of engagement and recovery, Naslund and Patel said. The initiative will also train frontline workers to recognize when patients require specialized care, for example in acute crisis situations, and support a referral system, they added.
The Cloudbreak Initiative, which will scale detection and treatment in primary care centered on two proven approaches: measurement-based care, the routine use of repeated, validated measures to track symptoms and functional outcomes in clinical settings, and the collaborative care model, an integrated approach to the treatment of depression that involves care managers and consultant psychiatrists engaging directly within primary care settings. Together, these approaches have been proven in multiple studies to help at least 40 percent of people treated in primary care achieve full symptom relief and another 25 percent to recover substantially.
The Path Forward, an existing partnership between leading North Texas health purchasers and their national counterparts, harnesses the power of public and private health leaders to reform payment approaches to incentivize health systems to accelerate adoption of effective depression care provided to employees and their dependents.
The Lone Star Depression Challenge deploys proven approaches to overcome the systemic barriers preventing Texans with depression from accessing care sooner and more effectively.
Cloudbreak is redesigning primary care for depression to function just like primary care does today for heart disease and cancer, EMPOWER is making access to evidence-based care more equitable by building a community-based mental health workforce which can link people in the least resourced communities to care sooner, and The Path Forward is harnessing market forces to speed implementation of both approaches.
The Meadows Institute, which will oversee the Lone Star Depression Challenge, was founded in 2014 to help Texas legislators, state officials, members of the judiciary, and local leaders identify equitable systemic solutions to mental health needs and has become Texas’s most trusted source for data-driven mental health policy. The Meadows Institute has begun to make a significant impact in multiple areas, helping Texas leaders shift the focus of new investments toward early intervention, address the mental health crisis in jails and emergency rooms, expand the mental health workforce, and improve access to care for veterans and their families.
“The Lone Star Prize will make possible the first-of-its kind, wide-scale expansion of three proven initiatives to improve the lives of Texans living with depression,” said Andy Keller, president and CEO of Meadows Mental Health Policy Institute. “On behalf of the Meadows Institute and our partners in this project, we are immensely grateful to Lyda Hill, Lyda Hill Philanthropies, and Lever for Change for the opportunity and encouragement to dream big and share these bold solutions across our great state.”
EMPOWER is one of five workstreams in GlobalMentalHealth@Harvard, a University-wide interdisciplinary initiative based at HMS that Patel launched in 2018 to work toward a world where mental health is valued and realized by all through a combination of transformative education, research, innovation, and engagement.
“I am excited to bring evidence-based interventions emerging from global contexts to the U.S. Our rollout in Texas builds on critically important formative work to adapt these interventions for the U.S. and to test the use of digital technologies for training frontline workers,” Patel said, noting that crucial support for the development of EMPOWER’s work on the Lone Star Depression Challenge came from Mala Gaonkar and the Surgo Foundation, Natasha Müller, the National Institute of Mental Health, the Wellcome Trust, and the American Psychological Association.
View the full Lone Star Prize announcement from Lyda Hill Philanthropies and Lever for Change here.
Portions of this story are adapted from a Meadows Institute news release.
Over the next few weeks, GMH@Harvard will be featuring a five-part series on the largest mental health genetics study in Africa and the project’s corresponding training initiatives. The study and training efforts are a collaboration between scientists in Ethiopia, Kenya, South Africa, Uganda, and Boston at the Harvard T.H. Chan School of Public Health and the Broad Institute. The series explores issues of equity, ethics, building the next generation of psychiatric geneticists, and what it takes to recruit more than 35,000 people.
Addressing Stigma, Advancing Diversity, and Overcoming Inequity
NeuroGAP-Psychosis scientists explain the taboo around mental illness in Kenya and Uganda and why genetic diversity is so important to the study of mental health disorders. Click here to watch video
NeuroGAP-Psychosis: Reaching out to participants
Study staff from Uganda and Kenya share what it takes to recruit more than 35,000 people and what their goals are in the end for NeuroGAP-Psychosis. Click here to watch video.
NeuroGAP-Psychosis: Presenting Early Findings
The Moi University team in Kenya discovers interesting ethnolinguistic findings from the first genetic and demographic data they collected. Click here to watch video.
Investigators share the outcomes they hope to see from the study: reducing stigma around mental health disorders, new treatments for several mental illness, and increasing research infrastructure at their institutions. Click here to watch the video.
Bioethics: Autonomy, Equity, and Cultural Considerations
Three bioethicists from Kenya and Uganda talk about how they address ethics in genetics and mental health genetics, scientific fields still new to many parts of Africa. Click here to watch the video.
Written by GMH@Harvard Ambassador Board Members: Sarah Coleman, Amruta Houde, Bill Kriebel, Anna Bartuska
This year’s World Mental Health Day theme, Move for Mental Health: Let’s Invest, is timelier than ever. Mental health concerns and needs are growing and expected to substantially increase moving forward. Yet, mental health services have been consistently underfunded. During the COVID-19 pandemic, mental health services have been disrupted or halted in 93% of countries worldwide. As the treatment gap continues to widen, significant investment is needed to increase access to care for the most vulnerable worldwide. In the first two articles of this 3-part series, we discussed what it means to invest in mental health broadly (part 1) and how to invest in your own mental health (part 2). But, the question remains, how can we financially invest in mental health? This article emphasizes why the #TimetoInvest is now and offers an introduction to two types of funding mechanisms.
“World Mental Health Day is an opportunity for the world to come together and begin redressing the historic neglect of mental health. We are already seeing the consequences of the COVID-19 pandemic on people’s mental well-being, and this is just the beginning. Unless we make serious commitments to scale up investment in mental health right now, the health, social and economic consequences will be far-reaching.”-Dr. Tedros Adhanom Ghebreyesus, Director-General of the World Health Organization
Watch WHO’s Big Event for Mental Health Here
The Problem: Why Now?
The greatest cause of disability globally is poor mental health, compounded by poverty, conflict, climate change, systemic racism, economic instability, and most recently, the COVID-19 pandemic. This unprecedented global pandemic has significantly affected many people’s mental health and restricted access to care for those with existing mental health conditions. The mental health impacts of COVID-19 include everything from increased anxiety and fear about the spread of the virus, loss of social networks, stressful experiences of healthcare workers on the frontlines, and a higher risk of substance use. Despite these significant impacts, mental health has not been at the forefront of global health funding. In LMICs, less than 1% of national health budgets are spent on mental health and only 0.4% of health development assistance is spent on mental health, despite the fact that for every US $1 invested in scaled-up treatment for common mental disorders there is a return of US $5 in improved health and productivity according to the WHO. Even more, a recent analysis by the World Health Organization estimated that the cumulative global impact of mental disorders in terms of lost economic output will amount to US $16 trillion over the next 20 years. Such an estimate marks mental health out as a highly significant concern not only for public health but also for economic development and societal welfare (WHO/WEF).
The Solution: Discrete and integrated funding streams
Though mental health funding streams have expanded in the last decade, more investment is urgently needed. Investing in mental health also offers opportunities for return on investment for individuals, families, and communities as individuals can return to meaningful work. We propose a call to action for the global mental health community to invest in expanding two types of funding for global mental health: discrete mental health funding streams and integrated funding streams. To illustrate these two funding streams, we draw upon and cite examples from various leaders in the field of global health, including Partners In Health. Partners In Health (PIH) is a non-profit, global health organization that fights social injustice by bringing the benefits of modern medical science to the most vulnerable communities around the world.
Discrete mental health funding streams provide the opportunity to pilot new models and treatments. Current funding is often predominantly research-focused, which is essential in growing our understanding of mental health conditions and strengthening the toolkit of effective, evidence-based strategies and treatments. Discrete funding can also support implementation of evidence-based practices into routine care delivery. For example, Grand Challenges Canada (GCC) helped support the establishment of a community-based mental health program in Haiti with Partners In Health/Zanmi Lasante which is now a model for national scale and continues to support global mental health projects worldwide today. Private organizations or foundations (such as corporations, pharmaceutical companies, etc.); and individual donors, many of whom often have lived or personal experience and understand the impact of mental health conditions, can also be key partners.
The second type of funding stream is mental health funding integrated with other health conditions as a wedge issue. Given the high comorbidities with mental health and physical conditions, integrated funding streams have the potential to not only improve mental health outcomes but have an impact more broadly, for example, to improve adherence to tuberculosis treatment or to provide psychosocial support to people with cancer. Alternatively, grants to promote HIV treatment can include mental health components around social support or counseling. COVID-19 offers yet another opportunity to incorporate mental health as a wedge issue into funding for health systems strengthening or emergency response initiatives. There are numerous examples of integrated models of mental health care, proving its impact for both the delivery of quality mental health care and as an advocacy tool. Partners In Health sites across the globe have taken this approach in integrating mental care into primary care in Haiti, Rwanda, and Mexico; with care for multi-drug resistant tuberculosis patients in Lesotho and Kazakhstan; with homeless care programs in Liberia and Sierra Leone; with care for non-communicable diseases in Malawi; and with maternal health care systems in Peru. The link between physical health and mental health is clear, and research indicates that integration of services improves patient experience and efficiency of health systems.
Both types of funding streams are needed to address the immense burden of disease globally. However, with any mental health funding, buy-in from service users is needed from onset to ensure that mental health programs reflect the priorities and needs of beneficiaries. Involving individuals with lived experience in developing and driving funding priorities is also essential for ensuring the appropriateness and impact of funded initiatives.
How can you invest in mental health?
World Mental Health Day was on October 10th, but the movement continues. In the spirit of this year’s theme “Move for Mental Health: Let’s Invest” here are a few ways that you can support your own, your community’s, and global mental health:
- Invest in the strengthening of mental health care delivery to the most vulnerable by donating to organizations that are actively addressing these important needs like:
- View recordings of virtual events celebrating World Mental Health Day such as “The Big Event for Mental Health” organized by the World Health Organization.
Share a photo or video of how you are “Moving for Mental Health” on social media and tag #MoveForMentalHealth and @GMHatHarvard.
Written by GMH@Harvard Ambassador Board Members: Bill Kriebel, Sarah Coleman, Anna Bartuska, and Amruta Houde
All artwork by Bill Kriebel
October, World Mental Health Month, begins at the end of this week! Saturday October 10th is World Mental Health Day and the theme this year is Move For Mental Health: Let’s Invest. The World Health Organization, for the first time ever will be hosting a global online advocacy and fundraising event on Mental Health.
We have aligned our three-part series to coincide with this important theme.In our first article of the series we discussed with Elisha London, Founder and CEO of United for Global Mental Health, about what it means to invest in mental health and how we can take action to improve global mental health. In this article, we share ways that you can invest in your own mental health, especially through mindfulness and expressive arts. Our third article of the series will be released after World Mental Health Day and explore financial investment in global mental health.
It’s time to invest in your own mental health
Let’s get real. COVID 19 is stressful and impacts how we feel, what we say to ourselves, and what we do. Our lead author went through a lot of stress leading 13 teams in nine countries and turned to mindfulness and expressive arts to stay mentally healthy. Now he shares these experiences as a Certified Peer Specialist and through this article seeks to share these strategies with others. In this article, we offer ways and resources to help you stay emotionally and mentally healthy during these challenging times. The following list of strategies is not mean to be comprehensive, but instead help you begin to invest in your own mental health. You may wish to start with these articles to set the stage.
Invest in relaxing
Pretend like we are meeting in a big living room with a nice warm fireplace
Be comfortable and mindful
Meditate: Rest with your body and breath
Why? You are investing in reducing stress, staying calm, and improving your immune system
Invest in gratitude every day
Find greatness in being at home
Living is a miracle!
Savor your cuisine, it nurtures you
Why? You are investing in staying positive no matter what
Invest in being deeply aware of what is
If you can go outside, let nature speak to you
If you are spiritual, take time to cultivate spirituality
Now is the only time you actually live
Why? Investing in connecting with your inner and outer world will raise awareness of how you really are.
Invest in your body and your health
Walk, Exercise, Yoga, Run, Hike, Swim, Breath
Eat well, regularly and diversely
Consistently maintain your hygiene
Why? Investing in your body is essential as science shows exercise can reduce symptoms of anxiety and depression
Link: Invest in your health
Invest in creating and expressing yourself
Dance, Sing, Play music
Draw, Paint, Watercolor
Why? Investing in playful heart energy and being present to boost your health and stay happy
Invest in challenging and strengthening your mind
Take classes, read, play games, etc
The importance is to keep your mind strong
Why? Investing in a strong mind keeps you young, active and healthy
Invest in building community!
This may be tricky with COVID. Definitions of community can change to fit the times.
Call family and friends, Zoom
Make sure your friends and family have the social support they need, especially if they are in quarantine or part of a vulnerable population
Check in on people you care about who are on the front lines such as clinicians, teachers, public health workers, etc
Join the global movement of COVID-19 response such as at Partners In Health and share success stories to lift each other up
Why? Investing in community keeps you connected with others which can become essential
Invest in your wellness recovery action plan
Who are the people that you will call in a mental health emergency?
Who will take you to the hospital?
Which doctors, medications, and allergies do the emergency room staff need to know
Which medical information do you need to have on hand?
Why? Investing in emergency preparation while you are mentally strong, is essential if you may need help
Link: WRAP plan
Invest in keeping your bills paid and finances well managed
Simplify and keep a consistent process
Save money now in case you need money for healthcare emergencies or lost work
Why? Investing in your finances now will greatly reduce mental health concerns when sick
The following provides a good workbook for finances and the above topics
Link: 8 Dimensions of Wellness
What if all of this is too much? Invest in getting help!
You may have a treatable mental health concern
Speak with a therapist or doctor
You could look up your concerns on the web, but this has dangers if you have a true concern
Why? Investing in one-on-one communication with a professional can isolate a specific concern that needs your attention
What if you know you have an illness? Invest in making connections!
Ok, this is not for everyone and is harder with Covid
Still, make the effort
Join a recovery community
Why? Investing in connecting with other people can be essential to healing, or at least beneficial
What if your illness is much more serious? Invest more!
If you have a serious condition and have tried many alternatives, you may need more
There are many residential programs throughout the US
Why? Investing in a residential program can help you treat your health holistically
Invest in learning about mental health concerns
Why? Investing in learning about mental health can help you and others take the best actions
Healthy and ready to help others?
Invest in the greater good of the world
We are in a time of multiple crises- public health, racial, economic, police brutality: all affecting our mental health and compounded by potential COVID-19 mental health related challenges
Why? This improves everyone’s mental health collectively, while helping ourselves
Don’t forget to invest in yourself and in your communities on World Mental Health Day, Saturday October 10!
Are you ready to #MoveForMentalHealth? Visit United for Global Mental Health and join the virtual #WMHD activities! Stay tuned for our third and final article Investing in Mental Health later this month!
Anna D. Bartuska, Program Coordinator, Community Psychiatry PRIDE, Massachusetts General Hospital
Sarah Coleman, Cross-Site Mental Health Officer, Partners In Health
Amruta Houde, Mental Health Program Associate, Partners in Health
William Kriebel, Master’s of Liberal Arts Student at the Harvard Extension School, studying Management. Certified Peer Specialist, Boston Medical Center
Written by GMH@Harvard Ambassador Board Members: Anna D. Bartuska, Sarah Coleman, William Kriebel
People worldwide are facing ongoing uncertainty and stress as a result of the COVID-19 pandemic, economic instability, and racial injustice. Prior to this year, research found that one out of ten people in the world had a mental health condition (with severe cases leading to a 10-25 year decrease in life expectancy). The cumulative burden of current events further threatens mental health and well-being worldwide. As a mental health wave looms, access to mental health services is limited with up to 90% of individuals not able to receive needed care in some low- and middle-income countries.
Now more than ever, it is #TimetoInvest in mental health.
But what does it mean to invest in mental health and how do we—as individuals, communities, and societies—take action? To answer these questions, we spoke with Elisha London, co-founder and CEO of United for Global Mental Health. Motivated by her own experience recovering from Post-Traumatic Stress Disorder (PTSD) and chronic depression, Elisha aims to galvanize greater action for mental health so that everyone, everywhere has access to mental health support. Prior to founding United for Global Mental Health, Elisha was the Campaign Director for Heads Together, a mental health campaign spearheaded by Their Royal Highnesses, The Duke and Duchess of Cambridge and Prince Harry.
What does it mean to invest in mental health?
When we talk about investing in mental health we are often discussing finances, but Elisha London emphasized that investing in mental health is broader than the bottom line. “Investing in mental health really means looking at how individuals, business, societies, and funders are prioritizing action on mental health,” she stated. Investing can include each of us promoting and prioritizing our own mental health, businesses supporting the wellbeing of their employees, universities supporting their students and staff and governments allocating resources to prevent and treat mental health conditions.
How has investment in mental health changed over time?
Recalling her professional experience in the past decade, Elisha noted that global mental health is a novel investment stream for many funders. Although individuals and organizations in a position to provide or support funding are likely to know someone who has suffered with a mental condition, a lack of historical precedent has stifled direct investment. Elisha shared insight to the reality that funding global mental health has previously not been on the minds of our local, national, and global investors, and changing mindsets that overlook mental health will take time. As a funding priority, progress on mental health has been limited by stigma, lack of available financial resources, finite human resource capacity, and prioritization of competing health concerns. Nevertheless, efforts emphasizing ‘no health without mental health’ and positioning mental health as a backbone of both emergency and long-term health systems strengthening efforts have helped support the integration of mental health into current priorities and funding streams.
When asked about the current state of global mental health funding, Elisha noted there continues to be a paucity of public dialogue on mental health. “Investing in mental health as we know it today began as a conversation in the research community and moved slightly to the political arena, but we have never had a strong citizen voice calling for action,” Elisha remarked. She further emphasized that the lack of public voice coupled with a need for more data continues to limit investments in mental health.
For future funding in mental health, Elisha suggests that we not only persuade governments to act but look toward the “new next generation of billionaires and new foundations” to help accelerate support, particularly for the non-profit sector. New funders and voices have already begun to emerge. Recently, Beyoncé and Jack Dorsey, the CEO of Twitter, committed $6 million to support mental health during COVID-19. As the dialogue continues to grow and advocacy expands the hope is for strong leaders in mental health funding to arise.
In 2018, when United for Global Mental Health was founded and hired their first employee, they only knew of one other organization that had funding for a professional with the job title of global mental health advocate. Since then the number of professional advocates has grown slowly and investments in mental health are increasing. Many organizations which historically focused on infectious disease, such as Partners In Health, have significantly expanded their mental health programs in the past ten years. Similarly, Sangath in India has been working in the mental health field since the 1990s but began to be internationally recognized over the past ten years for their work with children, adolescents, community health workers, and families. Momentum in the field of global mental health is reflected in increasing investments. According to the Institute for Health Metrics and Evaluation (IHME), US$160 million were invested in mental health in 2019—more than four times greater than a decade prior, but still a fraction of the US$9.7 billion invested in HIV/AIDS during the same year.
How can we invest in mental health?
There are many ways that we can invest in mental health and all are needed. “Everyone has to invest in different ways and that has to cover promotion, prevention, treatment, and recovery,” Elisha encourages. These types of investments are critical to the expansion of dialogue and action around mental health.
As a growing movement and burgeoning field, the conversation around global mental health has begun to take root. As more individuals find their voice and share their own story, Elisha reminds us that we also must be ready to meet their mental health needs: “We need to make sure there is a supportive system.” This includes investments in innovative interventions, novel delivery platforms, and increased workforce development programs. The growing advocacy has also spurred investors to ask what works and how it can be scaled. To answer these questions, effectiveness and implementation research will be imperative. Addressing the research community, Elisha encourages individuals to “look for the things that the world really needs answers to.”
When founding United for Global Mental Health, Elisha and her team asked, “Where are the gaps? How can we fill them with the skills we have?” Today, we can ask ourselves the same question. Whether you are a researcher, clinician, person with lived experience, student, or organization member—consider how you can prioritize mental health.
The GlobalMentalHealth@Harvard Initiative, will be releasing a mini-series to highlight ways to invest in the mental health of our communities and ourselves during COVID-19, and encourage further discussion about the return on investment in mental health. In upcoming articles, we will be featuring different ways individuals within our communities are investing in their mental health. Let us know how you have been prioritizing investing in your mental health by tagging us on Twitter @GMHatHarvard or emailing us at firstname.lastname@example.org.
One way to prioritize mental health today is to add your voice to the rapidly growing global movement for mental health advocacy. Speak Your Mind powered an Open Letter calling on world leaders to protect and scale up mental health support in all COVID-19 responses both now, and for the future. We invite you to invest in mental health by adding your name to the letter. And to learn more about mental health and COVID-19 you can join this webinar series organized by UnitedGMH and partners.
Anna D. Bartuska, Program Coordinator, Community Psychiatry PRIDE, Massachusetts General Hospital
Sarah Coleman, Cross-Site Mental Health Officer, Partners In Health
William Kriebel, Master’s of Liberal Arts Student at the Harvard Extension School, studying Management. Certified Peer Specialist, Boston Medical Center
On September 12th, the GlobalMentalHealth@Harvard Initiative and the Harvard Law School Project on Disability hosted a presentation and excerpt performances from “The Center Cannot Hold,” an opera composed by psychiatrist Kenneth Wells. The opera is based on law professor Elyn Saks’ memoir on her experience with schizophrenia. The event was held in the Hilles Performance Center for over 150 attendees.
“The Center Cannot Hold” focuses on Saks’ history of mental illness and her frequent hospitalization. Wells, a close friend, adapted the memoir into an opera in an effort to dispel ignorance surrounding mental health. Wells addressed his reasoning for collaborating on the project, saying that “it’s really the use of art to humanize experiences that people distance themselves from.”
According to Mental Health America, a community nonprofit, over 11 million Americans experience psychotic symptoms in their lifetime. Symptoms typical of schizophrenia are auditory or visual hallucinations, abnormal behavior, and personality alterations, among others. Saks’ and Wells’ goal is to destigmatize these maladies, providing an informative platform to better understand the underlying struggles of mental illness sufferers.
Other professors agree that engaging in opera performances is quintessential to educating audiences. Allison Voth, an associate opera professor at BU, feels that operas are unique artistic spaces for discussion. “They’re safe vehicles and expressive vehicles to talk about these issues and to open people up,” Voth said. Saks, a professor at USC Gould School of Law, hopes to reach listeners by providing a visual, artistic medium and emotionally addressing public stigma. Her purpose for putting on the production is to bring attention to poor mental health treatment, apathetic hospitalization, and “how toxic and traumatic some of the responses can be.”
The program included excerpts from the original opera, with three singers and Wells on piano. The singers included, Maggie Finnegan, Ryne Cherry, and Wes Hunter. More information about the singers can be found here in the event program. Maggie Finnegan portrayed Saks in the song titled, “I Could Be That Person.” The scene focuses on Saks’ sudden surge of hope in the face of her schizophrenia. “I really just think it’s about perseverance,” Finnegan said, after her performance. “If… you stick with the will to have the life that you want, it can happen.” Lyrically and musically, Saks believes the opera allows sufferers to see hope personified through song and feel less alone. According to Saks, her goal was to make mental illness digestible for all audiences, creating a safe space for productive discussion and support.
Speaking before the performance, Saks emphasized the importance of schizophrenics seeking help. “There’s actually a lot of evidence that ‘length of untreated psychosis leads downstream to more brain damage,’” Saks said, “so it’s really important to get treatment early.” According to the Canadian Journal of Psychiatry, symptoms of schizophrenia left unchecked can result in increased neurological damage and complications with treatment.
Composer Wells, a proponent of recovery through the arts, explained that music encourages persistence in the face of anxiety and fear. Wells shared his impact on low-income neighborhoods in providing artistic healing to patients. “[Community partners] felt the arts were very important, so we supported some of our clients, patients, in doing plays about their lives,” Wells said. Wells believes that combating mental illness with low-cost methods, such as writing and performing, empowers under-resourced areas to fight diseases typically left untreated.
In regards to musical therapy, Professor Voth addressed how opera is an important venue for offering dialogue. “When you pair music with extraordinary stories that are very powerful, it’s incredible,” Voth said. “It can really take people to different levels of understanding and feelings about a subject matter that they might normally be closed to.”
Jack Schultz, a Harvard graduate student, remarked that the opera encourages mental illness education and efficiently disseminates information to audiences. Schultz thought “The Center Cannot Hold” was an appropriate place to discuss the incubation of insensitivity in regards to mental illness.“I’m fascinated [by] the role that education plays in producing stigma,” Schultz said. “And particularly the kind of tragically ignorant comments that Elyn [Saks] received.”
The opera stages violent scenes of forced restraint and intensive medication. Saks, having experienced aggressive hospital staff and severe lack of emotional care while hospitalized, felt abandoned in a world that seemed not to care for her well-being. Due to modernized medical technologies, Saks recalls that her schizophrenia has become less severe and that fewer symptoms appear in her daily life. Saks stresses that personalized, diversified treatment is paramount to mental illness recovery. “Everybody’s different; different people respond in different ways,” Saks said. “It’s not one-size-fits-all.”
In the hopes of motivating audiences to reflect on their own mental health and the health of those around them, Wells and Saks aspire to reach wider audiences and impact viewers in a profound way. Wells reiterated that “the opera is, in a sense, saying it is possible to recover your life.” Wells is currently composing his next opera, which focuses on veteran resilience and recovery. Saks’ memoir, “The Center Cannot Hold: My Journey Through Madness” is available now.
Event synopsis article written by GMH@Harvard guest blog writer Cameron Morsberger. Cameron is a sophomore at Boston University studying journalism and psychology. She attended the event because she is fascinated by public perception of mental health issues and the underlying difficulties in communicating mental illness to audiences. As a personal issue for her, she was seeking to learn about mental illness to advocate for those afflicted by it. She finds that music has an incredible therapeutic element, and wanted to witness that healing process first-hand.